Kirsty’s Story

My fight against a condition called Neurofibromatosis (NF1)

Last updated
18th August 2008

"Please take a look at my new link below"

Online Donation

If you would like to make a donation towards my new target, then please visit my Just giving page where you can make a donation safely and securely to
'When You Wish upon a Star'
Please click the 'just giving' image below

Please help to make a poorly child's wish come true by making a donation

"Thank You".

Links I have updated:- About Me, Diary 2007, Money Raised and Supporters

Hi! My name is Kirsty

I started I writing what life is like with Neurofibromatosis when I was 9 years old (1999).

I live at home with my mum (Julie), dad (John) and brother Chris.

My Hobbies are:- Drama, Doing TV work (I love acting), Football,
Computers, Play-station 2, Raising Money for the Wish Team and Going to the Cinema.

I have a problem, which I would like to share with you.
I suffer from a condition called Neurofibromatosis (N.F) along with scoliosis.
I wear a Boston Brace to help support my spine.

1998 - 2004	2005 - 2006	2007 - 2008

	I had spinal surgery in 2005


Some of the fun events in my life plus fund raising events.

We are often asked how do you cope?
How we try and cope with our beautiful daughters condition
Click to read mum and dads journey with me

What is Neurofibromatosis (NF) ?

(NF), causes benign tumours to grow on the nerve endings, Click for more information on (NF).
"new" I have made a short documentary for WellChild on how I cope with my NF and Scoliosis you can watch the documentary of my day by clicking on the NF link.

What is a Boston Brace?

A Boston Brace is a very hard jacket, which you wear under your clothes and goes from the top of your chest to the bottom of your hips. Click for more information about a Boston Brace.