UK orders click Buy Now
Soft Cover £8.00

Kirsty's Story

Kirsty Ashton M.B.E

Living with a condition's called
Neurofibromatosis (NF1)
and Scoliosis.

US orders click Buy Now
Soft Cover $12.38

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Book Available "NOW"
Living with Neurofibromatosis and Scoliosis.
With input from three doctors. Click Buy Now on the Left if you live in the UK. Click Buy Now to your right for US orders. This Book is also Available on Kindle, please click here for more information. By buying this book you will be helping other poorly children.

My Diary 2013	Diary Archive 1998-2012	Mum & Dad's Journey with me	What is Neurofibromatosis?	What is Scoliosis?	What is a Boston Brace?	Fun Things That I Get Up to
Events for Charity	Items For Sale	Auction Items	Money Raised for Charity	Press Cuttings	My Pictures	My Supporters

Last updated
2nd April 2013

Welcome to my web site. I have updated the following links: My Diary 2013 and video on What is Neurofibromatosis

I started I writing what life is like with Neurofibromatosis and Scoliosis when I was 9 years old (1999). I live at home with my mum (Julie), Dad (John) and brother (Chris). I suffer from two condition's, Neurofibromatosis (NF1) and Scoliosis. I have written a book about living with NF1 and Scoliosis, which is now on sale. I am excited to share my story with the world and those living with NF and Scoliosis and by doing so I hope to bring a little hope your way. I was diagnosed with NF1 at 11 weeks old, I have always been the type of person to adopt a positive attitude and to live my life to the fullest, despite the challenges that NF1 has given me. I live a very active life style, I sometimes have crazy ides, which I always try out.

Overcoming my many challenges proves to both others and myself that while I may have NF1. NF1 does not have me. I do not know what lies ahead of me in terms of my condition, but I do know that I'll always make the most of what life gives me. No one tells you life will be easy, but we can all make the best of what do have. Supporting others with NF1 and Scoliosis has become a big part of my life and equally, I have been supported by many people I have met on my journey so far. People with NF1 tell me they feel isolated, but we do not have to allow this to happen. You are not alone and we can help each other. I have made a Bucket list of things I want to do in my life, visit my fun things link to see what I want to do.

"Please Note"

As you read this please keep in mind that all treatment and outcome
of results are specific to the individual patient and results may vary,
I hope that by sharing my experience with NF, Scoliosis and
my spinal fusion surgery it will help if you or
someone you know has any of the conditions.

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