Kirsty’s Story 


Living with a condition called Neurofibromatosis (NF1)
and Scoliosis

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Click to contact me by e-mail if you want any personal help and advice

Hi!  My name is Kirsty

 I started I writing what life is like with Neurofibromatosis when I was 9 years old (1999).
 
I live at home with my mum  (Julie), dad (John) and brother Chris.
 
 
I suffer from a condition called Neurofibromatosis (N.F) along with scoliosis.
I wear a Boston Brace to help support my spine.
I have written a book about my fight against the condition,
which will go on sale soon.

Last updated
  30th  August 2010  

Please take a look at my Items for Sale Link as I have got some cool wristbands that I have had made

Links I have updated:- 2010 Diary, Press Cuttings, Items for Sale and Auction Items.




Online Donation

Please help to make a poorly child's wish come true by making a donation.
So they can say
 "when I wished upon a star...my dream really did come true"

"Thank You".

   




Please Note.
As you read this please keep in mind that all treatment and outcome of results are specific to the individual patient and results may vary. I hope that by sharing my experience with NF, Scoliosis and my spinal fusion surgery will help if you or someone you know has any of the conditions.
  
Fun things that I get up to My Diary 1998-2004 My Diary 2005-2007 My Diary 2008-2009 My Diary 2010
My Friends from Hospital About my Friends What is Neurofibromatosis? What is a Boston Brace? Mum & Dad's Journey with me
My Favourite Sites Events for Charity Money Raised for Charity Press Cuttings Items for Sale
Awaiting Link Awaiting Link NEW Auction Items My Supporters My Pictures

Thank you  
To my friends at the "Printon" shop, Cheadle.
Keith, Pat, Alex for all your support
This Neurofibromatosis Webring
owned by Julie Ashton.
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