Kirsty’s Story 


My fight against a condition called Neurofibromatosis (NF1)

Hi!  My name is Kirsty

I started I writing what life is like with Neurofibromatosis when I was 9 years old (1999).
 
I live at home with my mum  (Julie), dad (John) and brother Chris.
 
 

I suffer from a condition called Neurofibromatosis (N.F) along with scoliosis.
I wear a Boston Brace to help support my spine.
I have written a book about my fight against the condition, which I hope to have published one day.

Last updated
    
7th March 2010  

Links I have updated:-  2008- 2010 Diary,  Money Raised for Charity and Events



Online Donation

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So they can say
 "when I wished upon a star...my dream really did come true"

"Thank You".

              

       
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Click to contact me by e-mail if you want any personal help and advice

About me & the fun times I have
My Diary 1998 - 2004
My Diary 2005 - 2007
My Diary 2008 - 2009
My Diary 2010
Mum & Dad's journey with me What is a Boston Brace ?

What is Neurofibromatosis ?

My Picture's My Favourite sites

My Friends from hospital

Read about my friends My Supporters Events for Charity Items for Sale
awaiting link awaiting link awaiting link Money Raised for Charity Press Cuttings
 
My Brother, Chris & Me


Please Note.
As you read this please keep in mind that all treatment and outcome of results are specific to the individual patient and results may vary. I hope that by sharing my experience with NF, Scoliosis and my spinal fusion surgery will help if you or someone you know has any of the conditions.
  
My Mum & Dad

  Thank you  
To my friends at the "Printon" shop, Cheadle.
Keith, Pat, Alex for all your support

 


This Neurofibromatosis Webring
owned by Julie Ashton.
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