Living With Neurofibromatosis Book
UK orders click Buy Now

Soft Cover  12
Kirsty's Story

Kirsty Ashton M.B.E

Living with

Living With Neurofibromatosis Book
US orders click Buy Now
Soft Cover $15.36
Online Donation
When you wish upon a star

My Diary
2013 - 2015

Diary Archive
Mum & Dad's
with me
What is
What is
What is a
Boston Brace?
Fun Things
That I Get Up to
Events for

Items For
Money Raised
for Charity

Last updated
October 2016

Welcome to my web site. I have updated the following links: My Diary 2013-2015, Fun things, Auction items and Press cuttings

I was diagnosed with NF1 at 11 weeks old, I have always been the type of person to adopt a positive attitude and to live my life to the fullest, despite the challenges that NF1 has given me. I live a very active life style, I sometimes have crazy ides, which I always try out.

Overcoming my many challenges proves to both others and myself that while I may have NF1. NF1 does not have me. I do not know what lies ahead of me in terms of my condition, but I do know that I'll always make the most of what life gives me. No one tells you life will be easy, but we can all make the best of what we do have. Supporting others with NF1 and Scoliosis has become a big part of my life and equally, I have been supported by many people I have met on my journey so far. People with NF1 tell me they feel isolated, but we do not have to allow this to happen. You are not alone and we can help each other. I have made a Bucket list of things I want to do in my life, visit my fun things link to see what I want to do.

"Please Note"

As you read this please keep in mind that all treatment and outcome
of results are specific to the individual patient and results may vary,
I hope that by sharing my experience with NF, Scoliosis and
my spinal fusion surgery it will help if you or
someone you know has any of the conditions.

2nd Book
"Living with Neurofibromatosis"
With input from doctors involved in my care and over 40 other people's stories from around the world with NF. Click Buy Now on the Left if you live in the UK. Click Buy Now to your right for US orders.
You can also email me for more information at the above email address.
1st Book
"Living with Neurofibromatosis and Scoliosis"
This Book is available on Kindle, please click here  for more information. If you would like a printed copy of this book, please go to the Items on Sale section of this site.


This site has been visited

© Copyright 1999-2014 Kirsty Ashton.  Web Design by: Kirsty Ashton.