Lewis
Lewis iwas your average toddler, walking,
running and talking. But at the age of 2 he
started to degenerate physically and is now less
mobile and able than a newborn baby. Mentally he
is fine. He has had countless tests - all
normal. To read more about this handsome young
fellow please click on his picture.
Jack
Jack’s dad (Martin) contacted my brother after
he read my story on the Internet. Jack has
Neurofibromatosis (but pleased to say not in a
bad way) and we attend the same hospital. Jack
is now in his teens, we became very good
friends.
Matthew
Matthew is in his 20's and suffers from CF (Cystic Fibrosis), he loves singing and acting (just like me) and I'm sure one day I'll be going to see him in a West End Stage show.
Katie
Katie suffers from Neurofibromatosis (NF1) too
and we became good friends after Katie read my
web page and contacted me. Katie enjoys singing
and dancing.
Bonnie
Bonnie’s mum, Lisa, contacted me after reading
my story on the internet. Both Bonnie and Lisa
suffer from NF1.
Megan
Meet my friend Meg. Meg is like her dad and has
to be doing something all the time and doesn't
like to stay in. Meg likes music and likes
Dolly Parton, Billy Joel, Tina Turner etc. She
also likes Blues music. She loves musicals
and also loves watching all the old game shows
like Play your Cards Right and Bullseye.
Megan’s mum
contacted me after reading my story on the web,
Megan also has Neurofibromatosis and scoliosis
so if I can help her in any way I will.
Shelly contacted me after reading my story on
the internet. Shelly was diagnosed with
Scoliosis around 1990 and had an operation
in late 1994 to correct her curvature.